I have graciously been given permission to link to the following site, from my lupus sister, Rainwater. This site is still in the making, it is being written by the people who live with the disease, with their contributions to it. Every day it grows a little larger.

On the lists, we were talking about doing a book so that all people, even those without computers, can hear words from kindred spirits. This may possibly lead to that dream.

When I go to this site, I see myself in a lot of these writings. It is called "Living With The Wolf." If you do not know of the disease, you might not understand how to some those little four words, can throw you into a real panic and strike fear into your heart.

Imagine, my friend, that you have just suddenly, without any warning, fallen from a very, very great height. You have pain all over every part of your body, inside and out, you cannot move. Your mind is not clear, you are in a foggy daze, a drunken like stupor. You just want to lay there, it hurts to much to move, you have no balance to move with. But you do move, with the help of others, or a cane, or a brace, because all of this scares you.

So you dizzily, wobble, with unsure gait, slowly, rushing, you can't go any faster, no matter how hard you try, to your doctor.

Now imagine, the look you might have on your face when your doctor looks at you and says, "You will have to live this way for the rest of you life."

Lupus Mind